国内英语资讯:China to give more support to patients with rare diseases
<p><span word="BEIJING">BEIJING</span>, <span word="March">March</span> 1-- <span word="China">China</span> <span word="has">has</span> <span word="launched">launched</span> <span word="a">a</span> <span word="program">program</span> <span word="aiming">aiming</span> <span word="at">at</span> <span word="helping">helping</span> <span word="patients">patients</span> <span word="with">with</span> <span word="rare">rare</span> <span word="disease">disease</span> <span word="in">in</span> <span word="diagnosis">diagnosis</span> <span word="and">and</span> <span word="treatment">treatment</span> <span word="and">and</span> <span word="offering">offering</span> <span word="financial">financial</span> <span word="support">support</span> <span word="to">to</span> <span word="those">those</span> <span word="in">in</span> <span word="need">need</span>.</p><p>"<span word="The">The</span> <span word="cost">cost</span> <span word="of">of</span> <span word="treatment">treatment</span> <span word="and">and</span> <span word="care">care</span> <span word="throws">throws</span> <span word="a">a</span> <span word="lot">lot</span> <span word="of">of</span> <span word="families">families</span> <span word="into">into</span> <span word="poverty">poverty</span>. <span word="But">But</span> <span word="what">what</span> <span word="is">is</span> <span word="more">more</span> <span word="desperate">desperate</span> <span word="yet">yet</span>, <span word="is">is</span> <span word="that">that</span> <span word="people">people</span> <span word="often">often</span> <span word="simply">simply</span> <span word="don">don</span>'<span word="t">t</span> <span word="know">know</span> <span word="what">what</span> <span word="took">took</span> <span word="their">their</span> <span word="loved">loved</span> <span word="one">one</span>'<span word="s">s</span> <span word="life">life</span>," <span word="said">said</span> <span word="Wang">Wang</span> <span word="Yiou">Yiou</span>, <span word="head">head</span> <span word="of">of</span> <span word="the">the</span> <span word="Illness">Illness</span> <span word="Challenge">Challenge</span> <span word="Foundation">Foundation</span>, <span word="who">who</span> <span word="lives">lives</span> <span word="with">with</span> <span word="brittle">brittle</span>-<span word="bone">bone</span> <span word="disease">disease</span>.</p><p><span word="The">The</span> <span word="program">program</span>, <span word="which">which</span> <span word="was">was</span> <span word="launched">launched</span> <span word="Wednesday">Wednesday</span>, <span word="will">will</span> <span word="be">be</span> <span word="sponsored">sponsored</span> <span word="by">by</span> <span word="the">the</span> <span word="Illness">Illness</span> <span word="Challenge">Challenge</span> <span word="and">and</span> <span word="China">China</span> <span word="Social">Social</span> <span word="Assistance">Assistance</span> <span word="foundations">foundations</span>. <span word="It">It</span> <span word="will">will</span> <span word="help">help</span> <span word="with">with</span> <span word="diagnosis">diagnosis</span> <span word="and">and</span> <span word="treatment">treatment</span> <span word="of">of</span> <span word="up">up</span> <span word="to">to</span> 100 <span word="diseases">diseases</span>.</p><p><span word="With">With</span> <span word="its">its</span> <span word="enormous">enormous</span> <span word="population">population</span>, <span word="disparate">disparate</span> <span word="geography">geography</span> <span word="and">and</span> <span word="socioeconomic">socioeconomic</span> <span word="inequalities">inequalities</span>, <span word="China">China</span> <span word="faces">faces</span> <span word="considerable">considerable</span> <span word="obstacles">obstacles</span> <span word="in">in</span> <span word="improving">improving</span> <span word="care">care</span> <span word="for">for</span> <span word="patients">patients</span>.</p><p>"<span word="Patients">Patients</span> <span word="in">in</span> <span word="remote">remote</span> <span word="areas">areas</span> <span word="like">like</span> <span word="the">the</span> <span word="northwest">northwest</span> <span word="often">often</span> <span word="suffer">suffer</span> <span word="years">years</span> <span word="of">of</span> <span word="physical">physical</span> <span word="and">and</span> <span word="mental">mental</span> <span word="torture">torture</span> <span word="and">and</span> <span word="have">have</span> <span word="to">to</span> <span word="bear">bear</span> <span word="with">with</span> <span word="misdiagnosis">misdiagnosis</span> <span word="or">or</span> <span word="delayed">delayed</span> <span word="diagnosis">diagnosis</span> <span word="before">before</span> <span word="they">they</span> <span word="know">know</span> <span word="what">what</span>'<span word="s">s</span> <span word="wrong">wrong</span>," <span word="said">said</span> <span word="Wang">Wang</span>.</p><p><span word="Wang">Wang</span> <span word="has">has</span> <span word="had">had</span> <span word="to">to</span> <span word="be">be</span> <span word="extremely">extremely</span> <span word="careful">careful</span> <span word="since">since</span> <span word="childhood">childhood</span>, <span word="as">as</span> <span word="a">a</span> <span word="simple">simple</span> <span word="fall">fall</span> <span word="could">could</span> <span word="prove">prove</span> <span word="deadly">deadly</span>, <span word="but">but</span> <span word="compared">compared</span> <span word="with">with</span> <span word="children">children</span> <span word="who">who</span> <span word="die">die</span> <span word="of">of</span> <span word="various">various</span> <span word="organ">organ</span> <span word="failures">failures</span>, <span word="she">she</span> <span word="thinks">thinks</span> <span word="of">of</span> <span word="herself">herself</span> <span word="as">as</span> <span word="one">one</span> <span word="of">of</span> <span word="the">the</span> <span word="lucky">lucky</span> <span word="ones">ones</span>, "<span word="At">At</span> <span word="least">least</span> <span word="I">I</span> <span word="can">can</span> <span word="walk">walk</span> <span word="and">and</span> <span word="breathe">breathe</span>."</p><p><span word="At">At</span> <span word="present">present</span>, <span word="Chinese">Chinese</span> <span word="patients">patients</span> <span word="with">with</span> <span word="rare">rare</span> <span word="diseases">diseases</span> <span word="have">have</span> <span word="very">very</span> <span word="few">few</span> <span word="options">options</span> <span word="in">in</span> <span word="terms">terms</span> <span word="of">of</span> <span word="treatment">treatment</span>.</p><p>"<span word="For">For</span> <span word="most">most</span> <span word="of">of</span> <span word="them">them</span>, <span word="there">there</span> <span word="is">is</span> <span word="no">no</span> <span word="effective">effective</span> <span word="treatment">treatment</span> <span word="and">and</span> <span word="when">when</span> <span word="there">there</span> <span word="is">is</span>, <span word="patients">patients</span> <span word="cannot">cannot</span> <span word="afford">afford</span> <span word="it">it</span>," <span word="said">said</span> <span word="Wang">Wang</span>.</p>
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